Jamie-Lynn Sigler Recalls Nights She ‘Fell Apart, Terrified’ Fearing Her Son Beau 'Was Going to Die' (Exclusive)

• The 11-year-old son Jamie-Lynn Sigler is hospitalized for 33 days with a rare autoimmune condition known as an acute disseminated encephalomyelitis
• Sopranos The actress tells people that while in the hospital, her son lost the ability to eat, walk and talk, and she was “terrified” that she would die
• Sigler says that her life experience with MS helped her to be a strong advocate of her son and that in his extraordinary recovery he helped Beau, who returned to school and was involved in sports

Jamie-alynn Sigler has learned to live with pain since she was diagnosed with sclerosis multiple when she had been 20 years old-she had been preparing anything for the type of anxiety she faced last summer when her 11-year-old son Beau was hospitalized with a rare, dangerous state of autoimmune life.

“These were the hardest days I have had in my whole life,” Sigler, 43, told People. “It was probably the most ease of ever that I have ever been.”

Jamie-Lynn Sigler and son Beau.

Jamie-Lynn Sigler/Instagram

Their crisis began last July after her “healthy, active” son suffered a week from high fever and headaches that culminated in not being able to urinate. “He was screaming with pain”, Sopranos The actress says.

Beau was admitted to the Dell Medical Center in his hometown of Austin in Texas, and was diagnosed with rarely autoimmune condition known as an acute disseminated encephalomyelitis, or Adem, which causes inflammation of the central nervous system and can develop after a virus or bacterial infection.

Over the next two weeks at the hospital, “he got worse every day,” says Sigler. “He lost his ability to walk and then talk. Then he couldn’t eat or move his mouth.” He lost 25 pounds. “There was nothing recognizable about my son.”

The doctors put it on 24-hour IV Epinephrine to keep it alive because it was inflated in the spine and brain prevented it from regulating its own blood pressure and heartbeat. “My husband and I would look at each other as, ‘Is that really happening? “” Sigler says about his husband for nine years, cutting Dykstra. “Indeed, we thought it would die.”

Jamie-Lynn Sigler and husband Cutter Dykstra.

Jamie-Lynn Sigler/Instagram

For over a month, Sigler stayed in the hospital along Beau’s side, while Dykstra took care of her younger son Jack, 7 years, and she has been dealing with her years of experience in managing MS challenges.

“It was wild to watch my son have neurological problems that mirrored mine in many ways,” she says. “My experience of understanding the body and inflammation and the brain helped. From 6 to 8pm I was on it. I was a coach. I would talk to him and tell him he could do it.” But, he says, “nights were when I could fall apart and be just a mom and be completely broken and terrified.”

Sigler relied on her family and friends for support, including her disorderly co -organization of Podcasta Christina Applegate. “She was there for me in a really scary moment. We sat together in prayer.”

Seeking help does not come easily to Sigler. “My friends jokes that on my tombstone, he will say quotes: ‘I’m fine. “But for the first time in my life, I actually managed to accept help because it was not for me – or it didn’t seem to be for me at that moment – it was for Beau,” she says. “To understand how loved and supported you are, this is something I will bring with me for the rest of my life.”

And then, 33 days after being received, Beau managed to leave the hospital. “The care we got, the attention that every family gets is incomparable,” Sigler says about Dell Children’s.

Son Jamie-Lynn Sigler Beau leaves the hospital.

Jamie-Lynn Sigler/Instagram

10-year-old son Jamie-Lynn Sigler leaves the hospital 33 days after the diagnosis of “Nightmare”

Initially, we were only in the constant state of gratitude. “But, he says,” there is still a journey of recovery. “Beau returned to school, returned to his baseball team and collaborates with a personal coach to recover strength.” There are some remaining things we physically deal with, and because of what he sees me, I know I understand. I know it’s hard not to be able to do something you used to do. ”

The psychological tribal trauma can be even more challenge. Although Beau does not remember any of his hospitalization, “he mentally went through something deep and tries to think of how to integrate it into life and is still a 11-year-old little boy,” Sigler says. “When you have the experience of almost death, there is an intense amount of gratitude you have for a living, and he constantly wants to express it, which is nice. He wants to climb and tell everyone that he loves them and how amazing they are. But for another 11-year-old, it’s not how you do it.”

She had to adjust. “My son is different from a 10-year-old Beau who entered the hospital in July,” Sigler says. “We are joking, calling him Beau 2.0. The person who really benefited from what happened this summer is my little one, Jack, because they are no longer fighting!”

Beau also teaches guitar and has developed a love for writing songs: “This is how it chanks his emotions.”

Jamie-alynn Sigler son Beau.

Jamie-Lynn Sigler/Instagram

Stress can exacerbate a disease like multiple sclerosis, but Sigler says that helping Beau has actually recovered strength. “Sometimes when you focus on and do your own service, your body appears for you,” says Sigler, a spokesman for Novartis who developed a guide with a medication company to help others manage life with a degenerative neurological disease. “There was no big fall. I’m fine. I’m not fighting physically as if I think a lot of people expected.”

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And, she says, she is inspired by looking at her son. “I saw the way the body could heal, and I should have seen it. And I saw Beau’s commitment to his healing. It added another layer of discipline I had for myself and my health.”

Sigler, who is in the process of writing memoir, says that, how traumatic experience it was, “he slowed our family in such a beautiful way. We are so present with each other. I just don’t much more than being home, only four of us.”

This article was written by an independent editorial team of people and fulfills our editorial standards. Novartis is a paid advertising partner with people.

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Source: HIS Education